Update

Well it has been a little while since I typed anything for this bog, so here is a little summary of what has been happening in the last month.
I have gotten a little frustrated with the lack of progress with Carter's medical issue. When we first met with his specialist over a year ago I never imagined we would still be dealing with it. His colon has been shrinking, but I am not fully convinced we are doing everything we can. Adjusting meds off and on is not my idea of the right "fix", but I did not go to medical school.
Next thing. Steeven still has diarrhea, yes still. I'm not sure how many foods we need to cut out of our diet, but I am craving food! Actually we eat pretty good, but I think it is the lack of flexibility I miss. I took both boys to a Naturopathic doctor and at that point Steeven had been off of dairy for a while and we as a family had been off of gluten for almost a week. So we get some supplements for the boys and are told to cut out Dairy, Egg and Gluten for two weeks and see what happens. The idea is we can get our systems cleaned out and then slowly add each item back and see how it effects us. Oh no problem I thought, we can do this. Two weeks will be over before I know it! That is so not how it has gone.
My precious, humble, giving, adorable, loving grandfather had finally had enough here on earth. He longed to be with my grandma since July when she passed away. We took the kids down at Easter time so he could meet Steeven. It was a good trip and we got lots of pictures to remember it by. Then we got a call saying he was not doing well and we should come to see him soon. We did. It was a very busy weekend for him, he had a lot of visitors. I got to spend time with him and the kids got to talk with him, I thought it went well. I could tell he was very ill, but I thought we would have a little more time. We got home on a Sunday evening and I got a phone call Monday morning at 7:20 saying he had passed away that morning. You would think I was a basket case, not so. I will tell you that I am a stuffer, yes a stuffer. For those of you who do not know what it is allow me to enlighten you. A stuffer is someone who can stuff their feelings down inside to a point where they are very hard to get out. Why would I do this, well I think it was modeled for me, so it is what I know. I did it at this particular time because my kids were right there with me and I knew what would happen if I broke down right before school, not good. That entire day was busy,as is everyday, but I kept thinking, "Will I be able to feel what I need to, can I get back the feeling that I just stuffed". Well thankfully I have this time. This was one of the biggest losses in my life. I was very close to my grandma as well, but I think it was different when I lost her because there was still one of the pair left, you know? Someone to still tell their stories, to chat with about what it was like when they helped my dad to raise me and my brother. It was just different. I am blessed to have had the most wonderful grandparents in the world.
Another thing that ahs been happening si with Steeven. He has, since February, had 3 episodes where he goes limp and his eyes roll back in his head. Very scary for all of us. The last time it happened was when were traveling for the funeral. When we got back home I called his doctor and we are now scheduled to see a Pediatric Neurologist on Wednesday. I am very curious as to what will happen at this appointment and very hopeful.
So that is what has been happening at our house in the past month. Oh, I forgot to mention school, baseball, softball, work, extra work for Wade and on and on. Such is life, but I am eagerly anticipating a slow down for some of these things and answers for our health issues.